Welcome

Our website is dedicated to our family and the struggle of our child, Nora, who has a terminal disease called Spinal Muscular Atrophy (SMA).

The purpose of this website is to celebrate Nora's life by sharing as much as we can.

We appreciate all your feedback and comments. Please keep them coming.

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The Goodentree Story

The story of our family and how the terminal diagnosis of Spinal Muscular Atrophy changed everything.

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InsideSMA

Our Sister website that gives advice to SMA families. We also sell a variety of products that help SMA children to move and interact and stay healthy.

 

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Nora's Videos

Nora's own YouTube channel. She has over 70 videos for you to watch with more always being added. Stop by and subscribe to support us.

 

Virtual Kindergarten with Nora

Skype into the classroom

Virtual Kindergarten with Nora

We officially have a Kindergartner!  Honestly, we’ve been preparing for Kindergarten for almost a year! Nora essentially attended two years of preschool with a fantastic teacher that would come to our house twice a week for an hour each visit. While it didn’t feel like it was a lot of schooling, it was a great introduction to a school "routine". Nora wasn’t a big fan of school at first - often she'd cry or roll her eyes where she didn’t want to participate. Over the two years, Nora has matured and her perception of school has changed ...a lot...

What'd She Say Wednesday #12

What'd She Say Wednesday #12

 

The weekly series we will post every Wednesday as we collect some of the more "unique" phrases of Nora.  

Nora has been earning money and asking to put it into her piggy bank.  She makes a wish for each coin she adds to that bank as well.  Usually its the same wish over and over again if we add more than one coin at a time.  Anyway, she's now very interested in what everything costs, and thinks everything and everyone can be purchased at the toy "rainbow" store (she calls it the rainbow store because of the paint on the exterior) or the bear store (Build-a-bear) or Target.    

Jaime: "Nurse Kim's going to wake you for school tomorrow"

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What'd She Say Wednesday #11

What'd She Say Wednesday #11

 

The weekly series we will post every Wednesday as we collect some of the more "unique" phrases of Nora.  

Nora looses her second tooth on Monday night and these were taken from the conversation that immediatly ensued.

Nora [holding her tooth that fell out]: "What's the name of my finger?"

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