Welcome

Our website is dedicated to our family and the struggle of our child, Nora, who has a terminal disease called Spinal Muscular Atrophy (SMA).

The purpose of this website is to celebrate Nora's life by sharing as much as we can.

We appreciate all your feedback and comments. Please keep them coming.

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The Goodentree Story

The story of our family and how the terminal diagnosis of Spinal Muscular Atrophy changed everything.

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InsideSMA

Our Sister website that gives advice to SMA families. We also sell a variety of products that help SMA children to move and interact and stay healthy.

 

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Nora's Videos

Nora's own YouTube channel. She has over 70 videos for you to watch with more always being added. Stop by and subscribe to support us.

 

What'd She Say Wednesday #17 - simply amazing

What'd She Say Wednesday #17 - simply amazing

We are always so incredibly proud of Nora and in awe of her.  There is no better example than the first Nora quote.  It's truly amazing how she gives us little hints to understand what she's trying to communicate.  Singing the alphabet, then stopping before the letter she's been trying to get me to hear.  unbelievable.  I found myself crying typing this because this whole thing is so goddamned unfair.. she's just so incredible.. and one day she'll be gone.  

Nora: (looking at a product package) "The i is upside down?"

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Orange Beach Alabama Day 3 - The sunset

Orange Beach Alabama Day 3 - The sunset

Day three began with something we've never done before.  We took Nora to her first arcade. It wasn't the type of arcade with rows of video games, but more of a Chucky Cheeses type place with tickets you earn from skill games that can be exchanged for lackluster prizes. Since we were in Orange Beach technically during the off season, and school was in session, we figured the arcade would be less crowded right when they opened.  We were right, so much so that.....

What'd She Say Wednesday #16

What'd She Say Wednesday #16

 

The weekly series we will post every Wednesday as we collect some of the more "unique" phrases of Nora.  

Here are some recent one-liners delivered by Nora

Nora (referring to our 20th floor condo): "I want to go back to our tower home"

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What'd She Say Wednesday #15 beach edition

What'd She Say Wednesday #15 beach edition

 

The weekly series we will post every Wednesday as we collect some of the more "unique" phrases of Nora.  

Since we are on vacation at the beach, we figured we list a few of the things she's said on this trip ..so far 

Nora (talking to Jaime): "What's in your mouth?"

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